Diario di cjgriffith1, 18 lug 23

Tuesday still in hospital. 2nd IVIG infusion and PET scan scheduled today. Staying here through Thursday - not sure if I will be discharged on Thursday or Friday. Nurse weighed me this morning. I can’t eat or drink today until after the PET scan which is scheduled for 1:30.
84,8 kg Perso fino ad ora: 1,4 kg.    Rimanenti: 12,2 kg.    Dieta seguita: Abbastanza buono.

1028 kcal Gras: 44,98g | Prot: 46,61g | Carb: 108,01g.   Pranzo: Creamed Macaroni with Cheese, Chocolate Chip Cookie (Home Recipe or Purchased), Tartar Sauce, Dole Creamy Coleslaw. Cena: Boost Boost Plus Chocolate, Chicken Parmesan, Great Value Vegetable Medley. Snacks/Altro: Saltine Crackers, Chicken Broth, Bouillon or Consomme, Snack Pack Juicy Gels Sugar Free. Di più...
Calando 4,8 kg a Settimana


Commenti 
I hope you're home and feeling better quickly ❣️ 
18 lug 23 da utente: 2melons
You ever get to eat anything? Do your scan go okay? Hope your having a better day.  
18 lug 23 da utente: Leah_guffey
Best best wishes that you get good news very soon 
18 lug 23 da utente: Yearofhealth2023
Wishing you a speedy recovery! 
18 lug 23 da utente: CeCeDoesIt
Hopefully you'll get answers soon!💜 
18 lug 23 da utente: Diana 1234
Sending well wishes . Hope you feel better 🙏💙 
18 lug 23 da utente: CharlieLovesChaplin
Thank you so much for the support. I was discharged from hospital last night) and was so glad to be home and sleep in my own bed last night. I don’t have a definite diagnosis yet but all indication are Inclusion Body Myostitis. One of the symptoms is trouble swallowing. I’ve received immunoglobulin by iv and it has seemed to help. Tracking food through this app is helping me be sure I get enough protein and am making healthy food choices (plus not drinking alcohol).  
21 lug 23 da utente: cjgriffith1
Sorry to hear that the treatment is so limited with that disorder. At least you are home now. Rest well and hopefully you can get some respite from your symptoms for now until the doctors are able to come up with a more effective treatment plan. Hugs 
21 lug 23 da utente: Leah_guffey

     
 

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